GlobalSkin CEO Jennifer Austin Expresses Her Thoughts on Rare Disease Day 2024
GlobalSkin CEO Jennifer Austin has recorded a video message in the lead up to the Rare Disease Day, taking place on February 29, 2024. In her video, Jennifer highlights GlobalSkin's mission as a leading advocate for individuals with rare skin diseases, representing 124 Patient Organizations in 42 Countries and over 29 Rare Dermatological Diseases. She sheds light on the challenges faced by those living with rare skin diseases, including limited treatment options and delayed diagnoses.
Jennifer also talks about GlobalSkin's #MySkinIsRare digital campaign, designed to raise awareness and foster unity within the global RareDERM community.
Patients with rare dermatological conditions are urged to play their part actively in raising awareness on rare skin diseases by using customizable social cards available on the GlobalSkin website and sharing their rare disease stories with the hashtag #MySkinIsRare. For more information and resources related to the Rare Disease Day, visit globalskin.org/MySkinIsRare
#RareDERM #MySkinIsRare #RareDiseaseDay2024 #GlobalSkinAdvocacy
#RareSkinAwareness #RareDiseaseAwareness #PatientAdvocacy
#GlobalSkinImpact #RareDermatologicalDiseases #JoinTheMovement
