The Invisible Struggle: Rare Disease Patients During the Pandemic
Hear from the author Maurizio Macaluso. Understand the unique experiences of rare disease patients and their families during the COVID-19 crisis. Explore the challenges they faced in accessing healthcare and managing their conditions.
Read the full article here:
https://publichealth.jmir.org/2024/1/...
Please cite as:
Macaluso M, Rothenberg M, Ferkol T, Kuhnell P, Kaminski H, Kimberlin D, Benatar M, Chehade M, The Principal Investigators of the Rare Diseases Clinical Research Network – Cycle 4
Impact of the COVID-19 Pandemic on People Living With Rare Diseases and Their Families: Results of a National Survey
JMIR Public Health Surveill 2024;10:e48430
URL: https://publichealth.jmir.org/2024/1/...
DOI: 10.2196/48430
#rarediseases #COVID19 #digitalhealth #publichealth #rarediseaseawareness
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