Advocacy training, The Myositis Association 2019 Annual Patient Conference

Опубликовано: 09 Март 2025
на канале: The Myositis Association (TMA)

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This is a session from TMA's 2019 Annual Patient Conference in Minneapolis. Learn about how you can become an advocate at the local and national level from TMA's partner National Organization for Rare Disorders (NORD). Learn about rare disease legislative priorities, including advancing research funding, raising disease awareness, ensuring treatment access and affordability, and strengthening the drug development process. The speakers are Kristen Angell, Associate Director of Advocacy, NORD & Maria Null, Community Engagement liaison, NORD Minnesolta Rare Action Network.

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🌐https://www.myositis.org/
📅https://www.myositis.org/calendar/
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💻 Originally aired 2019.