When should we be looking again at test results, held in a child’s medical record, to identify previously undiagnosed conditions or offer new clinically actionable findings? Should parents have the right to request reanalysis and if so how often?
As health records are increasingly digital, stored and accessible by health professionals beyond the immediate treating clinicians, the possibilities of further analysis are ever extending. There is now a need and an opportunity to agree an understanding of when it is expected and appropriate for test results in health records to be reanalysed and families recontacted.
Are there circumstances in which it is not only permissible but is even legally or ethically required to revisit and reanalyse? How should recontact be made and how should that vary depending on different factors, such as length of time passed, age of child, significance of results for others?
This event includes clinical, researcher, patient and legal perspectives on the questions of when it is okay, if ever, to take a second look at a child’s health record to reveal medical information beyond diagnosis relevant to the condition for which health care was sought.
Speakers: Heather Renton, Rachel Haverfield, A/P Cathy Quinlan, Dr Danya Vears